For those of you who have been following the legislation in Maryland, click on the links below to see two great news pieces on this topic:

Gazette.net

http://www.gazette.net/stories/062608/mounnew144809_32358.shtml

WBAL

http://www.wbaltv.com/health/16719296/detail.html

Also, here is an interesting article about a little boy with EE in Chicago – the great news is that there is now insurance coverage in Illinois for children with this disease!